Saturday, September 18, 2010

Hank

I don't even know where to begin. My normal day of running errands and eating lunch at Bajio took a huge detour and we found ourselves at primary childrens hospital with Hank around 4 this afternoon.

I took Hank to our pediatricians office around 1130 yesterday because his coloring was still off from his bout with the flu. His energy hadn't resumed either so they did a simple urine screening and found blood and lots of protein in his urine. We headed to AF Hospital to have a blood test after that and I was told to call my doctor back in a few hours for the results.

I don't know why but I was dreading making that call. Nothing could have prepared me for what the doctor said. I keep replaying that moment in my head and I still can't believe it. "Mrs Griffin, Hank has leukemia." What? I was in complete shock and I don't remember anything he said other than take him up to primary childrens hospital now and they will admit him.
After a few hours in the Emergency Room and several tests, we moved upstairs to a room on the immuno compromised floor. We met with the oncologist who had recently looked at all his lab work and she was very calm and reassuring. Hopefully I get all the information right because it's a lot. This is more for my record than anything.

She isn't' sure that Hank has leukemia based on the blood work she saw. The slide she looked at showed lots of red blood cells being destroyed and in leukemia it is more white blood cell destruction. She mentioned it could be something called hemolysis or HUS. The worry with that one is damage to his kidneys since his body is trying to get rid of so many toxins. She still isn't ruling out the possibility of leukemia but will know more around 10 this morning when more labs come back. He is very anemic and that seems to be one of the biggest concerns right now. They began a blood transfusion around 3 a.m. to try to boost his red blood cell count. They only gave him 100 cc's (about 3 oz) over the course of 3 hours and he had no adverse reactions. They continue to give him lots of fluid and medications to help him get rid of all the toxins in his body.

I have to find comfort in being at the most amazing childrens hospital in the country. They have an oncologist, a nephrologist, a pathologist, and countless nurses taking the best care he could possible get. They are being extremely careful to address every issue as it comes up.

Hank is being so brave. He has had more poking a prodding in the past 12 hours than in his entire life combined. He understands he is sick but doesn't know much else. I'm trying to keep it together in front of him. Randy is being the rock that he always is, giving Hank and I all the support he can muster even though he is struggling as well. I can't thank my family and friends enough for the love, prayers, and positive thoughts they are sending our way. Kate and Dan had Max last night so I know he was well taken care of. I couldn't possibly handle all of this without all of you.

I will try to keep this updated as soon as I get more information. Sorry for they typos, and confusing medical terminology. Randy, Hank, and I send our love and thanks.

14 comments:

sarah said...

My heart breaks. I'm crying just as I read this...and I already knew all of it. Did yesterday really happen?

Oh man, I wish I could be there every second. I am already so impressed by your strength. As I left the hospital last night, I was thinking how much you had already grown just from the time of the dreaded call. You never think, or hope, that you'll ever have to go through something like this. However, when you do... you get through it...and I know you will too. You're one of the strongest people I know- and Hank is so incredibly lucky to have you by his side.

You know how much I love my sweet Hank. The thought of him going through any of this makes me wish so badly that I could just take it over for him. After watching him last night, though, I'm not so sure I could do it any better. So tough.

You have so many people praying for you guys...all right here for anything you need. Max will be taken care of...Kate and I are working it out right now. Keep your mind on yourself and little Hank man right now, and Mino-head will be just great.
I'll be up....
I'll be waiting for the next results.

I love you all so much. Stay strong, sis. And please give Hank a squeeze from auntie Jabba.

Jennikunz said...

I can't even stand it! There are almost no words. I love Sarahs comment as I feel the same way! I just love your little boy so much! And you guys know I'm here for anything that will make your lives easier. Praying for my little Hankster, and you and Randy!

Anne Marie said...

Annie, oh my gosh, I am so sorry. I can't believe this. Poor sweet Hank. He is the best little guy in the world and I will be praying my heart out for him and for all you. I am in shock, I can't even imagine how you must be feeling. Please know you have my thoughts and prayers and I will do anything for you, I just wish there was something I could do that would make this easier for you. You are so wonderful. Please keep the updates coming. Love you!!!

Kate said...

I still don't believe it is real. I'm praying it's not. Dan, Lucy, Isabel, and I send our love and every good thought we can muster your way. Give Hank a big squeeze for us. Please know we are here for you and will do anything we can to help you guys through this. Max sends his love too. The first thing he said this morning was, "Hank's okay?" We love you! Talk soon.

Kate said...
This comment has been removed by the author.
itsahalesofalife said...

I am so sorry that your family has to go through this. Cancer is evil. Shantiell is always at Primary Childrens with Ethan and is there for you guys! Its so overwhelming and scary, I know. Stay positive and know that Hank is STRONG and in one of the greatest hospitals. Please know that we are here for you guys. We will keep Hank in our prayers and will keep checking in on you guys.
Danielle

Mendenhall Madness said...

I want you guys to know that I am here for you!!! I know all to well what you are going through. Annie, Randy you guys can do this. I know right now it feels like your trying to drink water out of a fire hose with all the information they are giving you, but you will get it.
ICS has the BEST nurses and Doc's in the world, they will love and care for Hank like he was their own.
I'm so sorry that you guys have to go through this, but trust me when I tell you that diagnoses is the hardest part. You guys will find a new normal and you guys will still find happiness ever where. Ethan was 5 when he was diagnosed as well and it just seemed wrong for someone so little to have to do so much (chemo, bone marrow transplant, radiation & antibodies treatments)but he did. and he did them all with style and strength. Yester day I asked Ethan if he had a hard time doing all the treatment and he told me "some days mom, but I was just fine" Hank is STRONG too and if he has to, he will do all the treatment that is required and he will suprise you and Randy!!!
Our prayers and love are with you all. Ethan and I will be up there on Monday for a clinic appt. if it's alright I would love to come and see you guys.
Hang in there moma.We are all in this together!!!

KayeLynne said...

Annie, I am in complete shock after reading this post!!! I am so sorry that your family is going through all of this. Please let me know if I can do anything! I can't even begin to imagine what you and Randy are going through right now. Poor Hank!! I want you to know that I will be thinking about and praying for your sweet little family.

bernalstacey said...

My mom told me yesterday, I am so sorry. I can only imagine what you must be feeling right now. We are all praying for Hank and your family. I hope it is not Leukemia. I only know about Hank from stories Grandma tells me, (That is so sad! I am your cousin and I have never seen your adorable and amazing kids) from the stories Grandma tells, I know if there is anyone who has the spunk to obliterate any obstacle that comes his way it would be Hank. I hope we can make it out to see you all real soon. I know that there is not much we can do out here in Georgia, you know you have our fasting and our prayers. If there is anything else you need please let us know.

Lindsay said...

Annie, Collette has been keeping me posted. Hank, you, Randy and Max are all in my prayers! And lots of them are coming your way from the Midwest. Love you all and stay positive, I can't imagine how hard this is as a mother, but know that lots of people love all of you and very positive outcomes are close!! Love, Lindsay

Lindsay said...

RIGHT as I pressed send I got the exciting text, "Not Lukemia!" Prayer is powerful!! LOVE YOU ALL!! You go Hank!!!

Robyn Cox said...

Annie, I have not been able to get you, Hank, and Randy off of my mind since my mom called and told me this news. I don't know what to say, but we are sending many thoughts and prayers your way. Thank you so much for posting....It is good to hear your voice (through words) and know that you are finding strength. Hank is an amazing little guy and he will fight this illness, whatever it may be. Love you guys---

huggin said...

Oh my gosh... my heart just sank... and then i read Linday's comment... not lukemia.... my thoughts and prayers go out to sweet little Hank... and you and randy and max! love you guys

Mandi said...

Annie, I am just catching up on your blog. I'm so sorry about Hank. We were just talking about you guys last week and wondering how things are with you. You guys will be in our thoughts and prayers.